Leoni's fight against NCL


Very slowly answers to our mails arrive. Some declines, they write if Leoni really does suffer from NCL there is no hope for her.
Some give us hope and inform us that with stem cell therapy the NCL could be cured.
We talk to a human geneticist, who knows Leoni very well, actually before she was born because he works in the fertility center
Leoni was "conceived". He encourages us that the enzyme-compensational therapy is probably the most promising therapy.
Therefore we concentrate on that one.

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