Leoni's fight against NCL
how to help
We get asked a lot how people can help us and we are mostly overwhelmed about the sympathy and helpfulness.
The aim of this homepage is to call attention to NCL, to provide information and also to receive information.
Maybe other parents with children who suffer from 'therapy-resistant epilepsy'
realise NCL symptoms on their kids. Many cases of NCL do not get recognised
because the disease is still unknown and rare.
But maybe someone has advice and suggestions for us and what else we could do.
Because people keep asking us if it is possible to donate money for Leoni, we came up with the idea to collect money for fundraising. We would give all the money to the research project which seems to be the most promising to fight NCL.
Attention: changes since 03.14.2011
by general request, we will use donations made after 03.14.2011 for Leoni's treatment. If you still want to participate in fundraising, please make a notice at the transaction.
The Gärtnerbank provided an account for free, which we appreciate a lot, thank you.